For Caregivers
Senior Connection
Offers several videos on death and dying that provide information to help seniors and their caregivers help themselves.
The Conversation Project
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. We developed the original Conversation Starter Kit as a useful tool to help people have conversations with their family members or other loved ones about their wishes regarding end-of-life care (available in 10 languages).
http://theconversationproject.org/starter-kits/
Conversation Starter Kit for Families and Loved Ones of Those Living with Alzheimer's Disease or other forms of Dementia
Caregivers and Health Care Surrogates: Family Caregiver Alliance (FCA)
Addresses needs of family members and others providing long-term care at home; offers programs at the national, state and local levels to support and sustain caregivers
National Family Caregivers Association (NFCA)
Educates and supports more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age
AARP
Caregiving Resource Center Caregiving Resource Center offers helpful tools, work sheets and tips on how to plan, prepare and succeed as a caregiver
http://www.aarp.org/content/aarp/en/home/relationships/caregiving.html
Administration on Aging’s National Family Caregiver Support Program
Provides grants to states and territories to fund range of supports that assist family and informal caregivers to care for their loved ones at home for as long as possible
http://www.aoa.gov/aoaroot/aoa_programs/hcltc/caregiver/index.aspx
Cognitive Impairment: End-of-life Decisions: Honoring the Wishes of the Person with Alzheimer’s disease Brochure from the Alzheimer’s Association addresses issues a family may face when the person with dementia nears the end of life
http://www.alz.org/national/documents/brochure_endoflifedecisions.pdf
Annual report of Alzheimer’s Association detailing burden of Alzheimer’s disease and dementia on individuals, families, state and local governments, and the health care system
http://www.alz.org/alzheimers_disease_facts_figures.asp?type=homepage
For Individuals
Advance Care Planning –Selected Resources for the Public
The following resources represent a broad array of materials to assist the public in better understanding advance care planning and related topics such as hospice and palliative care, caregiving, cognitive impairment, and legal issues. While extensive, this list is by no means exhaustive and other quality resources are also available.
The Conversation Project
The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. We developed the original Conversation Starter Kit as a useful tool to help people have conversations with their family members or other loved ones about their wishes regarding end-of-life care (available in 10 languages).
http://theconversationproject.org/starter-kits/
How to Choose a Healthcare Proxy and How to be a Healthcare Proxy
How to Talk to Your Doctor Starter Kit
Five Wishes
Guide on advance care planning, available in 26 languages
Consumer's Tool Kit for Health Care Advance Planning
Developed by the American Bar Association Commission on Law and Aging
http://apps.americanbar.org/aging/publications/docs/consumer_tool_kit_bk.pdf
The African American Spiritual and Ethical Guide to End of Life Care - What Y'all Gon' Do With Me?
Guide prepared by Heart Tones addressing historical, cultural and spiritual factors that influence African-Americans’ decisions about end-of-life care and planning.
Consumer's Tool Kit for Health Care Advance Planning
Developed by the American Bar Association Commission on Law and Aging
http://apps.americanbar.org/aging/publications/docs/consumer_tool_kit_bk.pdf
CRITICAL ConditionsSM
A community education program helping people understand the importance of planning for their end-of-life medical care, this comprehensive advanced care planning program developed by Georgia Health Decisions includes the CRITICAL ConditionsSM
Planning Guide
Thinking Ahead: My Way, My Choice, My Life at the End
Workbook and video created by California advocates with developmental disabilities
Loving Conversations
Produced by American Health Lawyer Association, follows fictional family through difficult process of making decisions for loved one who did not have advance directive
http://www.healthlawyers.org/hlresources/PI/InfoSeries/Pages/LovingConversations.aspx
Respecting Choices
Internationally-recognized, evidence-based program established in 2000 addressing process of advance care planning
Advanced Care Planning: Resources for Caretakers and Health Care Professionals
Providing Aging Counseling Online course developed by Carolina Geriatric Education Center that provides evidence-based and culturally-competent geriatrics education and training
For Health Care Proxies/Agents: Making Decisions for Someone Else: A How To Guide
Guide published by American Bar Association Commission on Law and Aging
“Good to Go” Toolkit and Resource Guide
Guide published by Compassion and Choices
http://community.compassionandchoices.org/document.doc?id=425
Growth House, Inc.
Offers free access to over 4,000 pages of educational materials about end-of-life care, palliative medicine, and hospice
National Healthcare Decisions Day – April 16
Initiative encouraging individuals to express their wishes regarding health care; provides variety of resources, including materials for public, media kits, and suggested activities
Senior Connection
Offers several videos on death and dying that provide information to help seniors and their caregivers help themselves.